About the speakers
Leeann Stevenson
Leeann Stevenson is Communications Manager and Trustee of the Smith Magenis Syndrome Foundation UK. Leeann’s dedication has resulted in the Foundation becoming the go-to organisation for information on Smith Magenis syndrome, not only for the United Kingdom, but across the world. Leeann is the mother to three children, William, Teddy and Lily who has a diagnosis of Smith Magenis Syndrome (SMS) which is a rare genetic syndrome associated with severe sleep disruption.
Caroline Richards
Professor Caroline Richards is Professor of Neurodevelopmental Conditions, Clinical Psychologist and researcher at the University of Birmingham. She also leads the programme of sleep and behaviour research at Cerebra Network. The aim of Professor Richards’ research is to reduce negative clinical outcomes for individuals with neurodevelopmental disorders. Her work with autistic children and children with rare genetic syndromes has thus far focused on reducing self-injury, improving sleep disorders and understanding the impact of premature birth. Her research uses experimental, epidemiological, single case and meta-analytic techniques to delineate risk markers, improve precision in models of mechanism and develop novel, proactive interventions.